It is my extreme honor to introduce to you the Newaygo Lions Varsity Basketball CHD kids that are being honored at the game. I met with the team on Monday and they are all honored and excited to play this game. I read them all the following paragraphs about the kid they are playing in honor/memory of and then when I asked them if they wanted to see a picture they all wanted to see the faces of the kids they were playing for. So here is the line up!!!!
#1 Sean O’Neil playing in Memory of Heart Angel Ethin RaiLuc Twigg
ETHIN RAILUC TWIGG 1/9/09-6/27/09 #1 SEAN O’NEIL
Ethin RaiLuc Twigg was born on January 9, 2009 with a Congenital Heart Defect(CHD) called Hypoplastic Left Heart Syndrome(HLHS). His defect is commonly referred to as having ½ a heart. Unless you looked under his clothes you never would have been able to tell that there was something wrong with my son. In 5 ½ months he went through 3 open heart surgeries and a diaphragm surgery. He was a true warrior. He had the most bright eyes and vibrant smile. His doctors all loved coming to his room when he was awake to see him smiling. He loved to be held and always fell asleep on my chest. He was a true sports fan and we watched Hockey, Basketball, and Baseball together. He loved waltzing up and down the hospital halls with me and he truly was the best dance partner I have ever had! Ethin may have been born with half a heart but he changed the hearts of thousands. Ethin has been the inspiration for many things that have happened in this area. Sadly on June 27, 2009 The Earth lost a Heart Warrior and Heaven gained a Heart Angel. Ethin is a true inspiration and missed by all who know him. May his half a heart have touched your heart and may his heart continue to beat in all of us! Fly High my Punk Love You Always!
Ethin RaiLuc Twigg was born on January 9, 2009 with a Congenital Heart Defect(CHD) called Hypoplastic Left Heart Syndrome(HLHS). His defect is commonly referred to as having ½ a heart. Unless you looked under his clothes you never would have been able to tell that there was something wrong with my son. In 5 ½ months he went through 3 open heart surgeries and a diaphragm surgery. He was a true warrior. He had the most bright eyes and vibrant smile. His doctors all loved coming to his room when he was awake to see him smiling. He loved to be held and always fell asleep on my chest. He was a true sports fan and we watched Hockey, Basketball, and Baseball together. He loved waltzing up and down the hospital halls with me and he truly was the best dance partner I have ever had! Ethin may have been born with half a heart but he changed the hearts of thousands. Ethin has been the inspiration for many things that have happened in this area. Sadly on June 27, 2009 The Earth lost a Heart Warrior and Heaven gained a Heart Angel. Ethin is a true inspiration and missed by all who know him. May his half a heart have touched your heart and may his heart continue to beat in all of us! Fly High my Punk Love You Always!
#2 John Harrington playing in Honor of Heart Warrior Andrew Huegel
ANDREW HUEGEL #2 JOHN HARRINGTON
Andrew was diagnosed with Tetrology of Fallot (TOF) when I was 20 weeks pregnant. He was born 6 weeks premature and endured his first open heart surgery when he was 6 days old, weighing just under 4lbs. His full repair surgery occurred at 7 months old. Andrew has had several cardiac catherization procedures to attempt to widen his narrow pulmonary arteries. He has three stents and faces mores caths and surgeries in his future. Andrew was also diagnosed with mild to moderate hearing loss shortly after his birth and wears hearing aids. Andrew is now a spunky three year old who loves life. Despite all the obstacles, he enjoys just being a little boy. He loves Thomas the Train and Elmo, being with his family, and playing with his cars and trains. We are so proud of him. He is the bravest little boy we know.
http://thehuegelfamily.blogspot.com/
Andrew was diagnosed with Tetrology of Fallot (TOF) when I was 20 weeks pregnant. He was born 6 weeks premature and endured his first open heart surgery when he was 6 days old, weighing just under 4lbs. His full repair surgery occurred at 7 months old. Andrew has had several cardiac catherization procedures to attempt to widen his narrow pulmonary arteries. He has three stents and faces mores caths and surgeries in his future. Andrew was also diagnosed with mild to moderate hearing loss shortly after his birth and wears hearing aids. Andrew is now a spunky three year old who loves life. Despite all the obstacles, he enjoys just being a little boy. He loves Thomas the Train and Elmo, being with his family, and playing with his cars and trains. We are so proud of him. He is the bravest little boy we know.
http://thehuegelfamily.blogspot.com/
#3 Brandon "Beano" Shultz playing in Memory of Heart Angel Ethan Bilpo
ETHAN BILPO 11/12/00-5/20/09 #3 BRANDON SHULTZ
Ethan was born with a congenital heart defect called, Hypoplastic Left Heart Syndrome (HLHS) on 11/12/2000. The left side of his heart was underdeveloped and required a 3-staged surgeries to re-route his heart. The 1st of his 3 open heart surgeries was when he was just 3 days old. The other 2 were performed by the time he was 3 years old. When Ethan was 6 years old (almost 7), he was diagnosed with Protein Losing Enteropathy (PLE). It is not certain what causes this nor is there a proven effective treatment or cure. Ethan earned his angel wings on 5/20/08. Everywhere Ethan went in his short 8 years, he touched so many lives in so many ways,...with his contagious smile, his honest and funny sayings and his courage to fight his long CHD battle, never, ever giving up,...but always pushing forward and making us laugh along the way. Ethan touched the hearts and lives of everyone who knew him. He is our hero, missed more than words can express and will remain in our hearts always and forever.
https://www.carepages.com/carepages/Ethansheart
#5 Aaron Shultz playing in Honor of Heart Warrior Logan Jacks
LOGAN JACKS #5 AARON SHULTZ
At the age of three Logan has underwent three major open heart surgeries and multiple other procedures. In spite of every complication and set back he has endured along the way he still wakes up every morning with a huge smile upon his face. He is an amazing little boy who loves life, his best buddies Sherriff Woody and Buzz Lightyear, Riding four wheelers with family, playing outside and just enjoying being a little boy. He is our Hero.
http://whenlifehandsyouabrokenheart.blogspot.com/
At the age of three Logan has underwent three major open heart surgeries and multiple other procedures. In spite of every complication and set back he has endured along the way he still wakes up every morning with a huge smile upon his face. He is an amazing little boy who loves life, his best buddies Sherriff Woody and Buzz Lightyear, Riding four wheelers with family, playing outside and just enjoying being a little boy. He is our Hero.
http://whenlifehandsyouabrokenheart.blogspot.com/
#10 Zenn Timmer playing in Honor of Heart Warrior Brycen Russo
Brycen was born on November 17th, 2007 with a severe heart defect called Hypoplastic Left Heart Syndrome. My family didn’t know about the defect till Brycen was about 15 hours old. Once we found out about Brycen he then was shipped to Detroit Children’s Hospital where he has had his two triple by pass open heart surgeries. No one would ever know about Brycen’s CHD because he is a tough little soldier boy! He is such a joy in life, nothing can hold his little butt down! He bounces back like nothing. He’s the next professional baseball player. He can throw really good for only being two years old. We practice everyday to be the best. Good luck handsome. Mommy loves you so much my little soldier boy. You make us proud. Keep up the great work. I love you so much Brycen.
#12 Tom Brown playing in Honor of Heart Warrior Brittney Butcher
BRITTNEY BUTCHER #12 TOM BROWN
Brittney is an 11 year old girl that on December 1, 2008 we were told that our daughters heart was 3 times the normal size it should be and that her heart was only functioning at 10%. After being transferred to U of M Mott Children’s Hospital and many tests later Brittney was diagnosed with Genetic Cardiomyopathy. On December 9, 2008 Brittney was listed as a level 1A on the transplant list. By an act that an only be described as a miracle, we received a call at 5:30am on December 16, 2008 (Only 6 days and 18 hours after being listed) that a heart had been located. Today Brittney is a healthy girl that is back in school, soccer, softball, and dance. Brittney is a very brave young lady that shares her story with other heart kids and families. She is a true inspiration to many and she is loved very much!
http://www.carepages.com/Brittneybutcher
Brittney is an 11 year old girl that on December 1, 2008 we were told that our daughters heart was 3 times the normal size it should be and that her heart was only functioning at 10%. After being transferred to U of M Mott Children’s Hospital and many tests later Brittney was diagnosed with Genetic Cardiomyopathy. On December 9, 2008 Brittney was listed as a level 1A on the transplant list. By an act that an only be described as a miracle, we received a call at 5:30am on December 16, 2008 (Only 6 days and 18 hours after being listed) that a heart had been located. Today Brittney is a healthy girl that is back in school, soccer, softball, and dance. Brittney is a very brave young lady that shares her story with other heart kids and families. She is a true inspiration to many and she is loved very much!
http://www.carepages.com/Brittneybutcher
#14 Justin Parker playing in Honor of Heart Warrior Jordan Snyder
JORDAN SNYDER # 14 JUSTIN PARKER
Jordan was born August 9, 2006. She was not diagnosed with a CHD until she was 1. She underwent her first open heart surgery shortly after her first birthday. Her surgery went well and she went on being a “normal” child with no restrictions or medications. She’s a vibrant 3 year old who goes to preschool and chases her brothers. Shortly after she turned two she was diagnosed with another CHD. Jordan would need surgery again. That surgery happened just a month ago in January 2010. Her surgery went well and she was discharged from the hospital Jordan developed a staf infection that went into her blood stream. She is currently receiving IV meds at home, but she is home. Jordan is still recovering, but she is doing well. Her smile is one that brightens any day.
http://fortheloveofmendinghearts.blogspot.com/
Jordan was born August 9, 2006. She was not diagnosed with a CHD until she was 1. She underwent her first open heart surgery shortly after her first birthday. Her surgery went well and she went on being a “normal” child with no restrictions or medications. She’s a vibrant 3 year old who goes to preschool and chases her brothers. Shortly after she turned two she was diagnosed with another CHD. Jordan would need surgery again. That surgery happened just a month ago in January 2010. Her surgery went well and she was discharged from the hospital Jordan developed a staf infection that went into her blood stream. She is currently receiving IV meds at home, but she is home. Jordan is still recovering, but she is doing well. Her smile is one that brightens any day.
http://fortheloveofmendinghearts.blogspot.com/
#20 Jerry Gonzalez playing in Honor of Heart Warrior Braeden Husted
BRAEDEN HUSTED #20
I was twenty- two weeks into my pregnancy when the doctors told us that our son would be born with a severe Congenital Heart Defect...HLHS. Braeden arrived into the world 16 weeks later, and our lives were forever changed. Braeden has undergone three open heart surgeries, as well as a G tube placement for feeding difficulties. He has developmental delays, but his joy for everyday life is contagious. He loves Spongebob, playing with his big brother, and all things Star Wars. We do not know what the future holds, but we hope that medical technology for our heart children continues to improve. Braeden has taught us that every single day truly is... a blessing.
http://braedensheartjourney.blogspot.com/
I was twenty- two weeks into my pregnancy when the doctors told us that our son would be born with a severe Congenital Heart Defect...HLHS. Braeden arrived into the world 16 weeks later, and our lives were forever changed. Braeden has undergone three open heart surgeries, as well as a G tube placement for feeding difficulties. He has developmental delays, but his joy for everyday life is contagious. He loves Spongebob, playing with his big brother, and all things Star Wars. We do not know what the future holds, but we hope that medical technology for our heart children continues to improve. Braeden has taught us that every single day truly is... a blessing.
http://braedensheartjourney.blogspot.com/
#21 Eric VanDam playing in Memory of Heart Angel Lindsay Groen
LINDSAY GROEN 6/14/06-5/16/08 #21 ERIC VANDAM
On June 14, 2006 in Luverne, Minnesota a little pink baby girl entered the world. She was 7lbs 5oz and 21in long. We were so surprised to have a little girl. Lindsay was a very happy baby full of smiles and rolls. She loved to eat and soon got the name “Lindsay Bear”. Lindsay loved life and loved to play. She loved playing with her big brother Tanner, her dog Kaye, her toys, and loved being outside. Her smile lit up the room and her “bear” hugs were the best. Lindsay was a very healthy little girl. At her 18 month check up her doctor heard a heart murmur. She then went to the cardiologist and was diagnosed with severe mitral valve prolapse. She never showed any symptoms of having a heart problem. Lindsay had open heart surgery at Children’s Hospital Boston April 7, 2008 to repair her mitral valve. Surgery went well and she was doing good. On April 15, 2008 she went into cardiac arrest caused by underlying heart issues. She was put on a life support unit called ECMO. On April 28, 2008 she had bypass surgery. After being on ECMO 33 days, On May 16, 2008 Jesus healed her heart and took her to paradise. Lindsay Bear is missed by all who knew and loved her. Not a day goes by that we do not think of her and miss her. We look forward to the day when we will be reunited with her in eternity. Until then we share her story to raise CHD awareness and to bring others to know Christ is their Savior.
On June 14, 2006 in Luverne, Minnesota a little pink baby girl entered the world. She was 7lbs 5oz and 21in long. We were so surprised to have a little girl. Lindsay was a very happy baby full of smiles and rolls. She loved to eat and soon got the name “Lindsay Bear”. Lindsay loved life and loved to play. She loved playing with her big brother Tanner, her dog Kaye, her toys, and loved being outside. Her smile lit up the room and her “bear” hugs were the best. Lindsay was a very healthy little girl. At her 18 month check up her doctor heard a heart murmur. She then went to the cardiologist and was diagnosed with severe mitral valve prolapse. She never showed any symptoms of having a heart problem. Lindsay had open heart surgery at Children’s Hospital Boston April 7, 2008 to repair her mitral valve. Surgery went well and she was doing good. On April 15, 2008 she went into cardiac arrest caused by underlying heart issues. She was put on a life support unit called ECMO. On April 28, 2008 she had bypass surgery. After being on ECMO 33 days, On May 16, 2008 Jesus healed her heart and took her to paradise. Lindsay Bear is missed by all who knew and loved her. Not a day goes by that we do not think of her and miss her. We look forward to the day when we will be reunited with her in eternity. Until then we share her story to raise CHD awareness and to bring others to know Christ is their Savior.
#23 Zach Franks playing in Honor of Heart Warrior Tommy Schomaker
TOMMY SCHOMAKER #23 ZACH FRANKS
Tommy Schomaker was born with a severe Congenital Heart Defect called Hypoplastic Left Heart Syndrome on Dec. 10, 2000. He has endured a total of five open heart surgeries to try and keep his native heart pumping, but in June of 2008, it was clear that Tommy was in need of another miracle and was listed to receive the Gift of Life through a heart transplant. His chances of receiving a proper match were slim due to all of the surgeries he had endured in his eight years of life. On June 3rd, 2009, after a year of waiting and on infusions to keep his native heart pumping, Tommy received a 'new heart' from a generous family who donated their child's heart in the midst of their darkest hours. Tommy has always had a fighting spirit and a true zest for life. He is a sensitive, faith filled, giving and 'wise beyond his years' child who has taken this heart journey and all of his hospital stays in stride. He his now an active and happy nine year old, attending school again and playing with friends! U of M Mott Hospital is very near and dear to our 'hearts' as they have been critical in Tommy's heart success!
https://www.carepages.com/carepages/ThomasEarl
Tommy Schomaker was born with a severe Congenital Heart Defect called Hypoplastic Left Heart Syndrome on Dec. 10, 2000. He has endured a total of five open heart surgeries to try and keep his native heart pumping, but in June of 2008, it was clear that Tommy was in need of another miracle and was listed to receive the Gift of Life through a heart transplant. His chances of receiving a proper match were slim due to all of the surgeries he had endured in his eight years of life. On June 3rd, 2009, after a year of waiting and on infusions to keep his native heart pumping, Tommy received a 'new heart' from a generous family who donated their child's heart in the midst of their darkest hours. Tommy has always had a fighting spirit and a true zest for life. He is a sensitive, faith filled, giving and 'wise beyond his years' child who has taken this heart journey and all of his hospital stays in stride. He his now an active and happy nine year old, attending school again and playing with friends! U of M Mott Hospital is very near and dear to our 'hearts' as they have been critical in Tommy's heart success!
https://www.carepages.com/carepages/ThomasEarl
#25 Kyle Madrid playing in Honor of Heart Warrior Derrick Carter
DERRICK CARTER #25 KYLE MADRID
Derrick Palmer Carter (AKA “D”) was born April 20, 2009 at the Medical university of South Carolina. We were told by many docors that D had a “complex little heart” because he has a single ventricle, dextrocardia, Transposition of the Greater Arteries, Pulmonary Atresia, and Mitral Valve Atresia. Basically D’s heart is backwards, on the wrong side and he functions using half of it. At 8 days old he had his first open heart surgery, and surprisingly came home 8 days later. Two days shy of his nine month birthday D had his second open heart surgery. Again he exceeded all expectations and was out of the ICU 28 hours later. Derrick is a ball of energy and does not let his “complex little heart” slow him down at all. He is determined to pull himself up despite being only two weeks post surgery, and we are sure he will walk very soon. He loves to play with his dogs, read books, and dance. D is a very happy little boy and brings joy to those who know him. We couldn’t be prouder of his strength and determination!
http://www.carolinacarters.blogspot.com
Derrick Palmer Carter (AKA “D”) was born April 20, 2009 at the Medical university of South Carolina. We were told by many docors that D had a “complex little heart” because he has a single ventricle, dextrocardia, Transposition of the Greater Arteries, Pulmonary Atresia, and Mitral Valve Atresia. Basically D’s heart is backwards, on the wrong side and he functions using half of it. At 8 days old he had his first open heart surgery, and surprisingly came home 8 days later. Two days shy of his nine month birthday D had his second open heart surgery. Again he exceeded all expectations and was out of the ICU 28 hours later. Derrick is a ball of energy and does not let his “complex little heart” slow him down at all. He is determined to pull himself up despite being only two weeks post surgery, and we are sure he will walk very soon. He loves to play with his dogs, read books, and dance. D is a very happy little boy and brings joy to those who know him. We couldn’t be prouder of his strength and determination!
http://www.carolinacarters.blogspot.com
And this is a picture of the shirts we are selling!!! If you want one contact me by email chdhlhs09@yahoo.com
Short Sleeved T-Shirts are $12
Long Sleeved Shirts are $16
Ladies Scoop Neck shirt $15
Add a name to the back for $5
My life has been changed by a CHD!!!
6 comments:
Jess,
What a great line up! I'm so excited for all that you are doing for CHD and to raise awareness. :) Thinking of you and praying for you daily.
Love,
Cassie
I can't wait to see how it all turns out Jess. Thanks for doing this and allowing our kids to be the faces the team is playing for!
Stef, Ryan, Wyatt and Logan
www.whenlifehandsyouabrokenheart.blogspot.com
I am SO excited to see how this turns out. I know it's gonna be GREAT! Thank you for allowing all of us to be part of it.
Big heart hugs and prayers,
Shannon
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Hello Jess,
You don't know me, but I am friends with Laura Groen. I have been peeking in on your blog for some time now. I am so happy that Eric Vandam (#21) will be playing tonight with "Lindsay Bear" on his shirt. I miss her a ton and have been thinking about her a lot lately. Thank you for sharing with all of us and thank you for sharing your Eithan with me. Praying for you and the game tonight. I can't wait to see pics and video of the game.
With Jesus' love, Carrie
Thinking of you and praying for you daily.
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