Well I am feeling a rush of things right now so this update may not be all that you are hoping for. Who knows maybe it will be everything you are looking for though. I do not have a complete amount for the heart ball, but I would be willing to hear all your guesses!!!
So Friday I set up the hall for the ball. I was there from 9:30 in the morning until 10:30 at night except for the hour I had to go to therapy. Saturday I woke up and seriously debated whether or not to stay in bed all day and skip the whole day and night or not. At that point I knew if I did not show up for my hair appointment it would not be long and there would be someone knocking on my door or breaking down my door. So I walked out of my house and the sun was so bright that I just trucked through the day and made it to the ball and through the ball.
So now may be a good time to speak about the ball. The ball was great. We had amazing food!!! The doctors were late and I was worried!!! I was so scared that they were not coming and then into salad they showed up and so did Ethin's pediatrician. So mid salad I gave a welcome and Dr. Byland prayed. As dinner finished Tom Coverly was introduced and he entertained us for a little bit. He is an illusionist and a good friend of mine. His girlfriend is equally amazing as she is a CHD survivor! Immediately following we showed this video. This is the video that most of you all helped to create so I thank you for that!!! Contact me if you want a copy please.
From there I introduced Dr. Bryan Goldstein and he spoke. Bryan was a very important provider for Ethin during his stay and honestly I was so honored that he agreed to speak at the Heart Ball. His speech was very factual, but it had so many personal touches to it and I am sure t one point I thought he was choking up a little. He recalled when he had to sit in a room with me a month after Ethin had passed away to talk about what had happened to my son. He remembered me saying that something good would come of this. Well I hope that he was able to walk away last night and know that I meant what I said that day.
I will say more about the ball when I get all the pictures, but here is one picture that I hope to use for the paper.
8 comments:
the video is great... you did a wonderful job on it..
I hope you don't mind but I have posted Ethin's site in awareness of CHD on Facebook.. my goal is for everyone to keep posting it in hopes somehow it will reach you.. Knowing he's reaching more people then you could ever know.. My thougths and prayers are with you... again Happy 1st Birthday Ethin and may God hold you high..
Thanks for sharing the pic from the Heart Ball. I am sure it was an incredibly hard day for you yet rewarding to see so many people there supporting your cause.
Stef, Ryan, Wyatt and Logan
www.whenlifehandsyouabrokenheart.blogspot.com
Dear Ethin...Happy birthday little man. Your mama and everyone that knew you miss you terribly. But your mama is so so sad..if she only knew how happy and healthy you are in the hands of God, I hope it would give her peace and joy so she could be happy and be there for your brothers and sisters....I guess it's heart-breaking to hear she has nothing. She has them..I know, I had others too. to the most loved and sadly missed little man
What an amazing this you did in memory of your son. Its hard when things are over & all you are left with is the pain & no more distractions. I find those to be some of the worst times. Your baby boy is looking down on you & he will help you get thru these moments. He is so proud of his mommy right!
Jessica,
What a way to honor your son on his first birthday! You should be proud of yourself and what you have done for him. Continue to honor him throughout the year by being the inspiration to other CHD families. My thoughts and prayers are always with you as I check your blog daily. Can't wait to see more pictures from your successful event!
Janel Lentine
Jillian's Mom (HLHS)
CP: JillianJanel
I just want to say Happy Birthday to a dear and sweet baby...he was here for a short time but he has touched a lot of people in his short time and he is going to touch a lot more!! You will see him again mommy and it will be for an eternity. I love that you made this heart touching video for your baby. I cried tears for all of the families involved and you sweetie. You be strong for your other babies and you will make even more of an impact in this world. I will pray for your strenght and will..Take care and be well...
That's a great picture! :)
The video, of course, made me cry. I can watch until I come to Derrick...then I lose it! I guess that's part of the point though, right? I'm sure most people have a hard time seeing all of those precious children. You did a great job.
I've been thinking about you a lot. If you need ANYTHING, call me.
Big heart hugs and prayers,
Shannon
What a beautiful video. Thank you for including my Sophia. Prayers are going out to you everyday.
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