Wednesday, March 17, 2010

This is Why it is Important

WARNING:  Pictures in this update may be hard to look at

Hot off Stef Jacks Blog here is the info for all of you that helped write a Letter of Hope for Broken Hearts.  Our voices can be heard here is all the info you need to have your child's story heard in D.C.
I finally have everything ready to share about how you, the many amazing heart mommies and daddies out there, can get your voice heard and also have your child's photo featured in the very same PBS documentary we are part of.

Betsy, the Children's Heart Foundation founder, wants to use the faces of CHD (photos of your adorable heart kids) in the documentary to show how prevalent heart defects are.  She also wants to take your letters to Washington D.C. in April when they lobby congress for CHD Awareness.

If you haven't already put your letter together get to work.  She needs them ASAP!!

In order to have your story taken to D.C. and for your child's photo to appear in the documentary you need to complete a release form and e-mail it along with your letter and photos.  Below is all of the info you need and where you need to send it.  Contact me if you have ANY questions or problems at jacks _rswl (at) mepotelco (dot) net

Important Note:  When e-mailing your info be sure to put your name on the e-mail so they know who it is coming from.


  1. Photo(s) of your child
  2. Letter sharing your story and most importantly why awareness for CHD awareness is needed.
  3. Click on the link to have the release form automatically pop up.  Type in your information (it is Microsoft Word) and save it to your desktop.  Then when you are ready to e-mail your other info attach it to your e-mail and send it off.
  4. Send your e-mail to chfbetsy (at) aol (dot) com  (don't forget to remove the spaces and change the (at) to @ and the (dot) to .  in the e-mail address.  Sorry, but in order to prevent her from getting spam e-mails I have to type it this way on the blog.)
Here is the link to the release form http://www.ourlettersofhope.com/CHFTalentRelease.doc  if you do not have Microsoft Word and are unable to open the release form here is the link to the PDF file http://www.ourlettersofhope.com/CHFTalentRelease.pdf .  You can print this off, fill it out and mail it to the address at the bottom of the form.  Just be sure when you e-mail your story and pics to add to your message that you had to mail your release form to TMK Productions because you could not open the release form.

Please share this on your blog or care page site for other heart families to find.  Be sure to link them back to my site so they can find more information on the documentary.  Here is the link to a previous post I did on the documentary http://whenlifehandsyouabrokenheart.blogspot.com/2010/02/part-of-something-good.html

Get to work Heart Families!!!  Let's shake Washington up, make them take notice and help to make a difference for our children!  Together we can do anything!


 This is why AWARENESS is IMPORTANT:
This is Ethin RaiLuc Twigg he is why it is important!  He was born on January 9, 2009 with Hypoplastic Left Heart Syndrome
This is why it is important
 This was the last time I held my son and he was already gone it is important.
This is why it is important
It is important because caskets should not be made this small.  No family should see this!
It is important, because this is my reality and it should not be anyone's reality.  My reality is Ethin's CHD killed him before he ever had a chance to live.  My reality is tears, hurt, anguish, and down right pain.  Now my heart is the broken one.  It is important because no family should go through this.

4 comments:

Stefenie said...

Wow Jess! {{{HUG}}} Those pics were incredibly hard to look at. I give you a ton of credit for being brave enough to share them with us.

Awareness is so important and it breaks my heart that it takes the death of a child to motivate people to speak up. It shouldn't be that way. The many voices of those standing up to CHD should be saving a child's life.

jacobcassie said...

It doesn't matter how many times I've seen those pictures or visited Ethin's gravesite, I tear up every time. I can't even begin to imagine what goes through you when you look at them. Your strength is truly a testimony of faith, I know there's no other way you'd get through it!

Your right, Ethin's memory and all of those other children out there still fighting are why awareness is so important.

Love,
Cassie

Louann said...

I wrote my letter w/pictures and signed the release form and sent it!!

I pray it makes a difference

Shannon said...

That picture of you holding Ethin took my breath away. It is beautiful!

I'm sure sharing those pictures was really difficult; looking at them was. Thank you for sharing. Ethin has made a huge difference in a lot of lives, and I sure hope you can see that. Not that it sould make it any easier...nothing will, but he is definitely making his mark on the world.

We love you! Big, BIG heart hugs and lots of PRAYERS!

I'm looking forward to talking to you soon!